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The conducted research

The BETTER registry

We have conducted research using the data collected through the BETTER registry, and the findings from some of these studies have been published in articles. Several other studies are currently ongoing.

Socioeconomic status and complications of type 1 diabetes

Key points: Despite the presence of public insurance, a lower socioeconomic status is associated with an increased risk of complications.

Talbo, Meryem Khadija et al. “Associations Between Socioeconomic Status and Patient Experience With Type 1 Diabetes Management and Complications: Cross-sectional Analysis of a Cohort From Québec, Canada.” Canadian journal of diabetes vol. 46,6 (2022): 569-577. doi:10.1016/j.jcjd.2022.02.008

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Reported vs. laboratory-measured glycosylated hemoglobin (HbA1c)

Key points: Individuals living with type 1 diabetes can reliably report their latest HbA1c result.

Wu, Zekai et al. “Self-reported haemoglobin A1c highly agrees with laboratory-measured haemoglobin A1c among adults living with type 1 diabetes: A BETTER registry study.” Diabetes & metabolism vol. 48,1 (2022): 101277. doi:10.1016/j.diabet.2021.101277

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Definition of severe hypoglycemia

Key points: A simplified definition of severe hypoglycemia (low blood sugar that cannot be treated independently) works just as well as the medical definition.

Madar, Houssein et al. “Influence of severe hypoglycemia definition wording on reported prevalence in adults and adolescents with type 1 diabetes: a cross-sectional analysis from the BETTER patient-engagement registry analysis.” Acta diabetologica vol. 60,1 (2023): 93-100. doi:10.1007/s00592-022-01987-9

The burden of hypoglyceamia

Key points: Hypoglycemia remains a prevalent burden despite the relatively widespread adoption of technologies (insulin pumps, continuous glucose monitors).

Brazeau, Anne-Sophie et al. “Self-reported Severe and Nonsevere Hypoglycemia in Type 1 Diabetes: Population Surveillance Through the BETTER Patient Engagement Registry: Development and Baseline Characteristics.” Canadian journal of diabetes vol. 46,8 (2022): 813-821. doi:10.1016/j.jcjd.2022.05.010

Prevention of nocturnal hypoglycemia

Key points: Depending on the technologies used (insulin pump, continuous glucose monitors), the strategies employed to prevent nocturnal hypoglycemia vary.

Talbo, Meryem K et al. “Are nocturnal hypoglycemia prevention strategies influenced by diabetes technology usage? A BETTER registry analysis.” Diabetes research and clinical practice vol. 191 (2022): 110080. doi:10.1016/j.diabres.2022.110080

Prevention of hypoglycemia related to physical activity

Key points: Individuals who identify as men more frequently use snacks to prevent hypoglycemia related to physical activity compared to those who identify as women.

Prévost, Melinda S et al. “Gender Differences in Strategies to Prevent Physical Activity-Related Hypoglycemia in Patients With Type 1 Diabetes: A BETTER Study.” Diabetes care vol. 45,3 (2022): e51-e53. doi:10.2337/dc21-1899

Risk factors and cardiovascular protection

Key points: There are certain limitations in treatment adherence for cardiovascular prevention, and achieving the goals is still suboptimal

Madar, Houssein et al. “Cardiovascular Risk Factors and Adherence to Cardiovascular Protection Practice Guidelines in Adults With Type 1 Diabetes: A BETTER Registry Cross-sectional Analysis.” Canadian journal of diabetes, S1499-2671(23)00069-2. 12 Apr. 2023, doi:10.1016/j.jcjd.2023.04.006

Other research studies

Here are the other research studies and sub-studies that we have conducted and have been published.

Development of the Support platform

Key points: Support is the first evidence-based self-guided web application for adults living with type 1 diabetes.

Xie, Li Feng et al. “Development of the Support self-guided, web application for adults living with type 1 diabetes in Canada by a multi-disciplinary team using a people-oriented approach based on the Behaviour Change Wheel.” Digital health vol. 9 20552076231152760. 24 Jan. 2023, doi:10.1177/20552076231152760

Adaptation of the Support platform for youth

Key points: Studying the needs of youth in relation to the transition to adult care for adapting our Support training platform.

Xie, LXie, Li Feng et al. “Adaptation of an Adult Web Application for Type 1 Diabetes Self-management to Youth Using the Behavior Change Wheel to Tailor the Needs of Health Care Transition: Qualitative Interview Study.” JMIR diabetes vol. 8 e42564. 26 Apr. 2023, doi:10.2196/42564i Feng et al. “Development of the Support self-guided, web application for adults living with type 1 diabetes in Canada by a multi-disciplinary team using a people-oriented approach based on the Behaviour Change Wheel.” Digital health vol. 9 20552076231152760. 24 Jan. 2023, doi:10.1177/20552076231152760

Treatment of hypoglycemia for automated insulin pumps

Key points: The 15g/15min recommendation for hypoglycemia treatment was neither excessive nor optimal for individuals using automated insulin pumps.

Taleb, Nadine et al. “Efficacy of treatment of non-severe hypoglycemia in adults with type 1 diabetes using oral carbohydrates during automated insulin delivery with and without glucagon.” Canadian journal of diabetes, S1499-2671(23)00094-1. 21 Apr. 2023, doi:10.1016/j.jcjd.2023.04.013