The conducted research
The BETTER registry
We have conducted research using the data collected through the BETTER registry, and the findings from some of these studies have been published in articles. Several other studies are currently ongoing.
Socioeconomic status and complications of type 1 diabetes
Key points: Despite the presence of public insurance, a lower socioeconomic status is associated with an increased risk of complications.
Reported vs. laboratory-measured glycosylated hemoglobin (HbA1c)
Key points: Individuals living with type 1 diabetes can reliably report their latest HbA1c result.
Definition of severe hypoglycemia
Key points: A simplified definition of severe hypoglycemia (low blood sugar that cannot be treated independently) works just as well as the medical definition.
Madar, Houssein et al. “Influence of severe hypoglycemia definition wording on reported prevalence in adults and adolescents with type 1 diabetes: a cross-sectional analysis from the BETTER patient-engagement registry analysis.” Acta diabetologica vol. 60,1 (2023): 93-100. doi:10.1007/s00592-022-01987-9
The burden of hypoglyceamia
Key points: Hypoglycemia remains a prevalent burden despite the relatively widespread adoption of technologies (insulin pumps, continuous glucose monitors).
Prevention of nocturnal hypoglycemia
Key points: Depending on the technologies used (insulin pump, continuous glucose monitors), the strategies employed to prevent nocturnal hypoglycemia vary.
Prevention of hypoglycemia related to physical activity
Key points: Individuals who identify as men more frequently use snacks to prevent hypoglycemia related to physical activity compared to those who identify as women.
Risk factors and cardiovascular protection
Key points: There are certain limitations in treatment adherence for cardiovascular prevention, and achieving the goals is still suboptimal
Other research studies
Here are the other research studies and sub-studies that we have conducted and have been published.
Development of the Support platform
Key points: Support is the first evidence-based self-guided web application for adults living with type 1 diabetes.
Xie, Li Feng et al. “Development of the Support self-guided, web application for adults living with type 1 diabetes in Canada by a multi-disciplinary team using a people-oriented approach based on the Behaviour Change Wheel.” Digital health vol. 9 20552076231152760. 24 Jan. 2023, doi:10.1177/20552076231152760
Adaptation of the Support platform for youth
Key points: Studying the needs of youth in relation to the transition to adult care for adapting our Support training platform.
Xie, LXie, Li Feng et al. “Adaptation of an Adult Web Application for Type 1 Diabetes Self-management to Youth Using the Behavior Change Wheel to Tailor the Needs of Health Care Transition: Qualitative Interview Study.” JMIR diabetes vol. 8 e42564. 26 Apr. 2023, doi:10.2196/42564i Feng et al. “Development of the Support self-guided, web application for adults living with type 1 diabetes in Canada by a multi-disciplinary team using a people-oriented approach based on the Behaviour Change Wheel.” Digital health vol. 9 20552076231152760. 24 Jan. 2023, doi:10.1177/20552076231152760
Treatment of hypoglycemia for automated insulin pumps
Key points: The 15g/15min recommendation for hypoglycemia treatment was neither excessive nor optimal for individuals using automated insulin pumps.