Rémi Rabasa-Lhoret, MD, PhD
Rémi Rabasa-Lhoret is an endocrinologist at the Montreal Clinical Research Institute (IRCM) and at the Centre hospitalier de l’Université de Montréal (CHUM), Director of the Diabetes Clinic and the Metabolic Diseases Research Unit at the IRCM and professor at the Université de Montréal . The primary focus of its type 1 diabetes research program is to reduce the frequency and consequences of hypoglycemia: 1) Test different strategies to prevent exercise-induced hypoglycemia; 2) Test the effectiveness of the external artificial pancreas to control blood glucose; 3) Study the consequences of hypoglycemia on the heart; 4) Evaluate whether hypoglycemia treatment recommendations should be reviewed; 5) Establish a registry of individuals with type 1 diabetes in Quebec and optimize the use of new technologies and therapies to prevent hypoglycemia. His team is also studying ways to increase the duration of the insulin pump catheter. The research group he directs has published more than 300 papers, presented data at over 100 conferences, and supervised 45 graduate students. He is the recipient of numerous awards and honors, including the 2017 Research Award from the Fédération des médecins spécialistes du Québec (FMSQ).
Anne-Sophie Brazeau, RD, PhD
Anne-Sophie Brazeau is an Assistant Professor and Program Director of Dietetic Education and Practice in the School of Human Nutrition in the Faculty of Agricultural and Environmental Sciences at McGill University. She is a registered dietitian and a member of the Ordre Professionnel des Diététistes du Québec (OPDQ) where she is involved in several committees, including the revision of the Clinical Nutrition Textbook. Her research program focuses on strategies to improve health behaviours of individuals with type 1 diabetes to optimize their control of the disease and its complications but also on prevention of type 2 diabetes in at risk populations through health behaviors changes. She was awarded the Prix Engagement 2017 – Lussier Dale Parizeau by l’OPDQ.
André Carpentier, MD
André Carpentier is a physician at the Sherbrooke University Hospital Center (CHUS), Director of the Diabetes, Obesity and Cardiovascular Complications Research Axis at the CHUS Research Center and Professor in the Department of Medicine at the University of Sherbrooke, Québec. His translational research program aims to promote better management of diabetes and lipid disorders through molecular imaging innovations developed within his laboratory. Dr. Carpentier has published more than 300 abstracts and peer-reviewed papers and 130 peer-reviewed publications. He is the recipient of numerous honors and awards and was recently elected a Member of the Canadian Academy of Health Sciences.
Kaberi Dasgupta, MD, M. Sc.
Kaberi Dasgupta is the Director of the Centre for Outcomes Research and Evaluation (CORE) at the Research Institute of the McGill University Health Centre (MUHC). She is a physician scientist who leads a large research program addressing behavioural and social determinants of diabetes prevention and management. She headed the SMARTER trial which demonstrated that physician-delivered step count prescriptions can increase steps and reduce A1C in type 2 diabetes. This was incorporated into the 2018 Diabetes Canada Clinical Practice Guidelines. Her studies have demonstrated that gestational diabetes and gestational hypertension have individual and additive risks for diabetes not only in mothers but also in fathers. She has conducted novel studies in family based diabetes prevention. She has examined stigma among youth in type 1 diabetes and co-built a virtual network for peer support. Her studies are funded by the CIHR, Diabetes Canada, the Lawson Foundation, the Medavie Foundation, and the Heart and Stroke Foundation of Canada. She has published more than 100 peer-reviewed papers and was the recipient of the Jacques de Champlain award from the Société québécoise d’hypertension artérielle in 2012 and the Preventive Cardiology Award of Excellence from the Heart & Stroke Foundation of Quebec in 2013. She has held the CIHR New Investigator Award and was an FRQS Senior Clinician Scientist.
Claudia Gagnon, MD
Claudia Gagnon is an endocrinologist at the University Hospital of Laval University (CHU de Québec), researcher at the Research Center of the CHU de Québec and at the Research Center of the Institut universitaire de cardiologie et de pneumologie de Québec and Associate Professor in the Department of Medicine of the Faculty of Medicine of Laval University. Dr. Gagnon is also a research associate at the Institute of Nutrition and Functional Foods at Laval University. Her work focuses on the impact of obesity, diabetes, and other endocrine disorders (and their treatments) on bone health. Dr. Gagnon has received several awards for her research, including the 2017 Research Award of the Fédération des médecins spécialistes du Québec (FMSQ), a 2015 Young Researcher Award from the American Society for Bone and Mineral Research, and an award at the International Symposium on Nutritional Aspects of Osteoporosis, in 2015.
Mélanie Henderson, MD, PhD
Mélanie Henderson is a pediatric endocrinologist – researcher at CHU Sainte-Justine holding a doctorate in epidemiology from McGill University. Her research interests focus on metabolic health, cardiovascular disease and the etiology of childhood obesity, and their prevention. She is particularly interested in the influence of lifestyle habits (physical activity, sedentary lifestyle, diet, sleep) on metabolic health, in various populations, including healthy children, as well as those with diabetes (type 1 and type 2). She is also co-director of the CIRCUIT center at CHU Sainte-Justine (Pediatric Center for Cardiovascular Prevention and Rehabilitation), which proposes innovative strategies for the treatment or prevention of cardiovascular diseases in children.
Laurent Legault, MD
Laurent Legault is an Assistant Professor specializing in endocrinology in the Department of Pediatrics at McGill University and is head of the Diabetes Clinic at Montreal Children Hospital. Dr. Legault is recognized in Canada for his clinical work on children with type 1 diabetes and his pioneering role in the use of insulin pumps in Quebec. He was the first medical director of the Montreal Children’s hospital’s insulin pump centre, a freestanding centre dedicated to the teaching of families and management of children on insulin pump therapy. He was one of the leaders of a government-mandated pilot project on the implementation of a provincial wide government sponsored pediatric insulin pump program. Dr. Legault has been involved in multicenter trials looking at prevention of type 1 diabetes and exercise-based interventions in the field of pediatric obesity and has been involved in the development of an artificial pancreas.
Meranda Nakhla, MD, M.Sc.
Dr. Meranda Nakhla is a Pediatric Endocrinologist, McGill University Assistant Professor and Fonds de recherche en santé du Québec (FRQS) Clinician Scientist at the Montreal Children’s Hospital, McGill University Health Centre. She is a health services researcher whose research focuses on healthcare access and use in children and adolescents with type 1 diabetes. She has expertise in health outcomes using health administrative data and the transition from pediatric to adult diabetes care. The results of her studies aim to identify the healthcare needs of children and youth with diabetes and ultimately help to inform how best to deliver diabetes care, including transition care for emerging adults. She is the recipient of FRQS Chercheur-Boursier Clinicien junior awards and operating grants from FRQS, Diabetes Canada and Canadian Institutes of Health Research (CIHR).
Bruce Perkins, MD, MPH
Bruce A Perkins is Professor, Endocrinologist and Diabetes Complications Clinician-Scientist at the University of Toronto appointed to the Faculty of Medicine and to the Institute of Health, Policy, Management and Evaluation. He holds the Sam and Judy Pencer Family Chair in Diabetes Clinical Research. His research work focuses on early biomarkers of diabetes complications, and interventions for prevention of complications, including artificial pancreas technologies and adjunctive-to-insulin therapies. In 2015, he was awarded the Canadian Diabetes Association/CIHR Young Scientist Award for his research. Among other projects funded by the NIH, JDRF, and Diabetes Canada, he leads an Innovations in type 1 Diabetes group within Diabetes Action Canada, a national patient-oriented research strategy.
Cynthia Turcotte, PhD
Cynthia Turcotte holds a Master’s degree in Clinical Psychology specializing in Childhood and Adolescence as well as a Research-Intervention Doctorate specializing in health psychology. From 2007 to 2015, she was a hospital psychologist for adults with chronic physical illnesses. As part of her duties, she and a multidisciplinary team (nutritionist, doctor, nurse, pharmacist) gave group classes to people with diabetes who addressed psychological adjustment to physical illness. She is also a speaker and author. Among other things, she has collaborated on the writing of publications on topics such as diabetes and autism spectrum disorders. Over the years, she has given several lectures on various topics, including psychological adaptation to chronic physical illness and the psychology of children and adolescents.
Aude was diagnosed with type 1 diabetes in 1991. She teaches at the Université de Montréal . With the team of researchers and patients of the BETTER project, she would like to help people living with type 1 diabetes find simple, effective, safe ways to avoid and overcome hypoglycemia.
Alec has had type 1 diabetes since 2011. He is a recent graduate in science and technology high school education. He is passionate about camping and the outdoors. Alec wishes to take part in the BETTER project to facilitate the spread of information and advice on type 1 diabetes, to develop a sense of community and to ensure that diabetes is not considered a limit to the practice of an activity.
Michel Dostie has had ype 1 diabetes for nearly 30 years and wants to highlight the importance of a social approach to diabetes and a reflection on its sociological, ethical and political aspects. He would like to contribute to better access to the latest advances in the treatment of type 1 diabetes and to the empowerment of those who must manage this condition.
Sonia has been living with type 1 diabetes since 2000. She does not want to define herself by the disease and prefers to say that she lives with type 1 diabetes, not that she has type 1 diabetes. She adapts (as much as she can) the disease to her activities and rhythm. With the knowledge she has gained over the years, she wants to contribute and give back to others to ease the burden of this disease. Positive, resilient and transparent by nature, she believes that she can be an asset to the patient partner team.
Nathalie is the mother of Vincent, who was diagnosed with type 1 diabetes at the age of 6 in 2017. She has been self-employed as a journalist and science writer for almost 20 years. Since her son’s diagnosis, she has been trying to raise awareness about type 1 diabetes by writing articles and features for a Quebec City community radio station. By participating in the BETTER project, she hopes to be able to make the voices of parents with children living with type 1 diabetes heard, as well as to educate people about diabetes.
Claude has been living with type 1 diabetes since 1984. He studied Automated Production Technology and worked in industrial engineering. He has developed a keen interest in science and is now particularly interested in climate change. With the Better project, Claude wants to help reduce the mental burden of people living with type 1 diabetes by developing self-management tools that are useful in everyday life.
Marie-Christine has been living with type 1 diabetes since 1988. She is a self-employed translator and enjoys providing her services as a volunteer or professional to organizations in the field of T1D. She is active on social networks where she shares her knowledge and experience in T1D groups. By participating in research projects and being a patient partner, she hopes to advance the cause and help demystify T1D.
Jacques has had type 1 diabetes for about 40 years. As a patient, he has been with the Montreal Clinical Research Institute (IRCM) for several years and has been involved in many research projects on various aspects of diabetes. In addition, he was a human resources administrator for twenty years in Quebec research institutes. He hopes that his experience as a patient with type 1 diabetes and his professional experience will be a positive contribution to the success of the BETTER project.
Eve Poirier has been living with type 1 diabetes (LADA) since 2018. She was diagnosed late in life, in her 40s. She explains her involvement in the BETTER project by her curiosity to learn more about type 1 diabetes by participating in the various studies of the IRCM but also to facilitate access to educational tools in order to have a better understanding of the disease and the impacts in the daily life of a patient (including his entourage) and health professionals.
Since she was diagnosed with type 1 diabetes at the age of 16, Andréane has been involved, particularly with children and adolescents, in several projects as a volunteer and as a professional since she is now a clinical nurse. She likes to try out all the new technologies, keep up to date on new products and her eyes light up when she hears about development in the field of T1D. Since diabetes has become a very exciting topic for her, becoming a patient-partner for the BETTER team was one more opportunity to share her opinions and participate in the research team’s conversations.
Virginie Messier M.Sc.
Research Coordinator, Montreal Clinical Research Institute (IRCM).
Virginie completed a bachelor’s degree in biomedical sciences at the Université de Montréal in 2006. She then completed a master’s degree in nutrition at the Université de Montréal . In 2009, she joined Dr. Rabasa-Lhoret’s research team as a research assistant. Since 2013, Virginie coordinates the research program on the external artificial pancreas of Dr. Rabasa-Lhoret’s laboratory. Since 2015, she has full responsibility for academic research activities in type 1 diabetes.
Sarah Haag, Nurse
Research Assistant, McGill University
Sarah graduated as a nurse clinician in France in 2011 before arriving in Quebec in 2013.
From 2014 to 2018, she worked at the CHUM’s Endocrinology Clinic where she monitored and trained people living with type 1 and type 2 diabetes. She developed during these four years an expertise and a greater interest in the education and support that surrounds type 1 diabetes.
Amélie Roy-Fleming RD, CDE, M.Sc.
Research Assistant, McGill University
Member of the Ordre professionnel des diététistes du Québec (OPDQ) since 2007 and Certified Diabetes Educator since 2010, Amélie began her practice as a nutritionist in a First Nations’ community in the James Bay region from 2008 to 2012 where she developed expertise for education in diabetes. She then pursued her career in public health at Diabetes Quebec (from 2012 to 2016) and as a clinician at the Université de Montréal Nutrition Clinic. Her recent master’s degree in nutrition confirms his interest in type 1 diabetes research.
Anne Bonhoure, M.Sc
Nutrition PhD student, Montreal University
Anne’s PhD will focus on the emergence of obesity in people living with type 1 diabetes. Using data collected in the BETTER registry, she will be able to study the causes and possible consequences of weight gain, as well as the link between obesity and social stigma and mental health.
Endocrinology Resident and Master’s candidate, Université de Montréal
Ran is working on the effectiveness of current guidelines for the management of hypoglycemia in the context of the Continuous Glucose Monitoring System (CGM). Her project aims to compare the effectiveness of 16g or 32g of oral carbohydrates in preventing hypoglycemia when the CGM shows a downward trend in blood glucose at a threshold of 4.5 mmol/L.
Lee Hill, PhD
Postdoctoral Fellow, RI-MUHC.
He received a Bachelor of Science degree in Human Biosciences and a Medical degree in Exercise Science from the University of Cape Town, South Africa. He is currently completing his PhD in exercise physiology. Previously, he worked on two clinical trials in pediatric gastroenterology at McMaster University before joining the RI-MUHC team. He has positioned himself as a mixed-methods researcher with a diverse research portfolio including exercise physiology, sports medicine, performance, rehabilitation, gastroenterology, microbiology and sociology.
Master’s in nutrition, McGill University
Asmaa is interested in the integration of technological tools in the management of type 1 diabetes in youth. Her research project aims to develop an online education platform for youth living with type 1 diabetes to improve self-management behaviors and blood sugar control.
Master’s in nutrition, McGill University
Alex’s project focuses on adapting the SUPPORT platform for healthcare professionals (HCPs). This projects goal is to with increase HCPs confidence levels in providing their patients with advice on T1D management and care.
Marie-Laure Lalanne-Mistrih, MD, PhD.
Marie-Laure is an endocrinologist and nutritionist, lecturer in Nutrition at the University of the West Indies and head of the Nutrition Department at the University Hospital of Guadeloupe. She wishes to promote exchanges between students from the West Indies and Canada on nutritional issues.
Her post-doctoral fellowship at the IRCM will consist of an epidemiological study of the emergence of obesity, its causes and consequences in people living with type 1 diabetes and LADA. His research will contribute to the valorization of the BETTER registry data.
Maha Lebbar, MD
Resident in endocrinology and candidate for the master’s degree in nutrition, Université de Montréal
Maha is interested in the impact of hypoglycemia on the quality of life and use of care of patients living with type 1 diabetes, as well as the effectiveness of new technologies, using data from the BETTER registry.
Houssein Madar, PhD
Postdoctoral fellow, Université de Montréal
Houssein is conducting research within the collective program for best practices and improvement of care and proximity services (COMPAS+) at INESSS. At the IRCM, he is interested in exploiting data from the BETTER registry on severe hypoglycemia in people living with type 1 diabetes.
Meryem Talbo, Dt.P. M.Sc.
Nutrition PhD student, McGill University
Meryem’s PhD aims to understand the use of new technologies in relation to hypoglycemia. She will analyze data from the BETTER registry to uncover technology use and prevention strategies to reduce hypoglycemia related fear and burden. She is also working on reviewing current clinical practices where professionals lack guidelines by defining a clinical practice consensus.
Zekai Wu, MD, PhD
Postdoctoral fellow, Montreal Clinical Research Institute (IRCM) & McGill University
Zekai’s project is to investigate the effectiveness and safety of novel diabetes technologies (continuous glucose monitoring, insulin pump, automated insulin delivery etc.) among people living with type 1 diabetes by using data from the BETTER Registry.
Li Feng Xie, Dt. P., M.Sc.
Nutrition PhD student, McGill University
Li Feng is working on the current SUPPORT platform. It is an online education platform for adults with type 1 diabetes. This 6-month intervention aims to evaluate the impact of the SUPPORT self-guided platform on the frequency and fear of hypoglycemia.
Co-investigators and collaborators
Mirna Azar – Hôpital Sacré-Coeur
Simon Bacon – Concordia University
Claudia Blais – Institut National de Santé Publique du Québec
Delphine Bouchard– Institut de recherches cliniques de Montréal
Geneviève Boulet – Centre Hospitalier Universitaire de Québec
Jean-Marie Boutin – Centre Hospitalier de l’Université de Montréal
Philippe Caron – Chicoutimi
Émilie D’Aoust – Hôpital Maisonneuve-Rosemont
Jean-Pierre Després – Laval University
Katherine Desjardins – Montreal Clinical Research Institute
Marie-Josée Dupuis –Hôpital Hôtel-Dieu de Lévis
Isabel Fortier – McGill University Health Center
Thierry Gaudet Savard – Institut universitaire de cardiologie et de pneumologie de Québec
Antony Karelis – Université du Québec à Montréal
Catherine Leroux– Institut de recherches cliniques de Montréal
Josée Leroux-Stewart –Angus Clinic
Maude Millette – Centre mère-enfant Soleil, Centre Hospitalier Universitaire de Québec
Daria O’Reilly – McMaster University
Tricia Peters – Jewish General Hospital
Éric Racine – Institut de recherches cliniques de Montréal
Elham Rahme – Centre Universitaire de Santé McGill
Michael Riddell – York University
Monia Rekik – Laval University
Yves Robitaille – Centre de Médecine Métabolique de Lanaudière
Diane Rottembourg – CIUSSS-Estrie CHUS, Hôpital Fleurimont
Judith Simoneau-Roy – CIUSSS-Estrie CHUS, Hôpital Fleurimont
John Weisnagel – CHU de Québec research center
Content creation and revision of the SUPPORT training program
Sarah Blunden RD, CDE, FAP Regional manager of the diabetes education program, LMC Diabetes and Endocrinology
Inès Boukabous, M.Sc., Institut de recherches cliniques de Montréal
Steve Chalifoux B.Sc. nursing, CDE, Hôpital Cité-de-la-santé, Laval
Catherine Goulet-Delorme, Clinical nurse, ÉAD, CIUSSS de l’Estrie – CHUS
Maha Saadé, RD, M.Sc., CDE, CIUSS Centre-Sud de Montréal
Thank you to all the people who were involved in the BETTER project.
- Samuel Abramson
- Émilie Curry
- Manon Lalonde
- Nouha Karabibene
- Patricia Kearns
- Annie Lajoie
- Fati Merah
- Eloïse Perrier
- Frédéric F Perron
- Melinda Prévost
- Monia Rekik
- Micheal Wright