Optional : possibility of sharing certain data (e.g. CGM, medication list), 2 additional optional questionnaires
The BETTER registry
Do you, or your child, live with type 1 diabetes in Canada ? Sign-up to the registry to improve care, research, and access to treatments and technologies.
4 REASONS WHY YOU SHOULD JOIN THE REGISTRY
Steps to follow
2
Complete the survey with the requested information
3
Submit the survey
4
Optional
Choose if you want to go further
5
You're signed up!
Connect to your email to receive your password to access our webinar replays
Register myself or my child
You have doubts and want to know if you are already registered?
Please contact us
Please contact us
Frequently asked questions
Is the information I give confidential?
Yes. A random participant number will be automatically assigned to you so that all your answers remain confidential. In addition, information identifying you as your first name, last name, date of birth, phone number, address and email address will be saved in a separate database.
Who will have access to my data?
Your data will only be accessible to the researcher responsible for the research project and his team. Any other researcher or pharmaceutical industry partner wishing to have access to the data must submit a written request and this request must be approved by the CHUM’s Research Ethics Board. Under no circumstances will information identifying you will be transmitted.
Is this project funded by the pharmaceutical industry?
The BETTER project is funded by the Canadian Institutes of Health Research and the Juvenile Diabetes Research Foundation for a four-year period (2018-2022). Non restrictive grants or donations from the pharmaceutical industry were obtained. You can find out about our partners here. Grants and donations from the pharmaceutical industry will allow to pursue the BETTER project beyond the 4-year initial funding period.
Can I withdraw from the research project at any time?
Yes. Your participation in this research project is completely voluntary. You may refuse to participate or withdraw at any time. If you decide to no longer participate in this project and no longer want your data to be used for research purposes, you must inform the research team (514 987-5696 or better@ircm.qc.ca). All your data will be destroyed.
Can I answer the questionnaires on my smartphone or tablet?
Yes. You can answer the questionnaires on any platform (smartphone, tablet or computer) as long as they have an Internet connection.
Can I answer the questionnaires on a paper format?
Yes. If you prefer to answer the questionnaires on paper, contact the research team at 514 987-5696 or better@ircm.qc.ca so that the questionnaires are sent to you by mail. These must be returned to us in a pre-stamped envelope which will be sent with the questionnaires.
Can I answer the questionnaires over the phone?
Yes. If you prefer to answer the questionnaires by telephone, contact the research team at 514 987-5696. A telephone appointment will be scheduled so that you can answer the questionnaires.
What if I lost my return code to continue answering the questionnaire?
If you have lost your return code, contact the research team at 514 987-5696 or better@ircm.qc.ca.
What if I lost the email containing the link to answer the questionnaire?
If you have lost the email containing the link to answer the questionnaire, contact the research team at 514 987-5696 or better@ircm.qc.ca.
What if an error message saying I cannot continue appears when I complete the questionnaire?
Just click on « Previous Page » and then « Next Page », and usually, it solves the problem. If this does not work, contact the research team (514 987-5696 or better@ircm.qc.ca).
How can I contact the research team?
You can contact the research team at 514 987-5696 or at better@ircm.qc.ca.
Want to help us get the word out about the project?
Here you will find downloadable material that you can print and distribute!