Yes. A random participant number will be automatically assigned to you so that all your answers remain confidential. In addition, information identifying you as your first name, last name, date of birth, phone number, address and email address will be saved in a separate database.
Your data will only be accessible to the researcher responsible for the research project and his team. Any other researcher or pharmaceutical industry partner wishing to have access to the data must submit a written request and this request must be approved by the CHUM’s Research Ethics Board. Under no circumstances will information identifying you will be transmitted.
The BETTER project is funded by the Canadian Institutes of Health Research and the Juvenile Diabetes Research Foundation for a four-year period (2018-2022). Non restrictive grants or donations from the pharmaceutical industry were obtained. You can find out about our partners here. Grants and donations from the pharmaceutical industry will allow to pursue the BETTER project beyond the 4-year initial funding period.
Yes. Your participation in this research project is completely voluntary. You may refuse to participate or withdraw at any time. If you decide to no longer participate in this project and no longer want your data to be used for research purposes, you must inform the research team (514 987-5696 or better@ircm.qc.ca). All your data will be destroyed.
Yes. You can answer the questionnaires on any platform (smartphone, tablet or computer) as long as they have an Internet connection.
Yes. If you prefer to answer the questionnaires on paper, contact the research team at 514 987-5696 or better@ircm.qc.ca so that the questionnaires are sent to you by mail. These must be returned to us in a pre-stamped envelope which will be sent with the questionnaires.
Yes. If you prefer to answer the questionnaires by telephone, contact the research team at 514 987-5696. A telephone appointment will be scheduled so that you can answer the questionnaires.
If you have lost your return code, contact the research team at 514 987-5696 or better@ircm.qc.ca.
If you have lost the email containing the link to answer the questionnaire, contact the research team at 514 987-5696 or better@ircm.qc.ca.
Just click on « Previous Page » and then « Next Page », and usually, it solves the problem. If this does not work, contact the research team (514 987-5696 or better@ircm.qc.ca).
The SUPPORT platform is currently being made available as part of a study to demonstrate its value in improving diabetes management. We need to test the platform’s effectiveness and usefulness before we can make it available to everyone.
Since this is a study, we need to meet certain criteria before we can give you access. The current criteria require completion of the registry as of May 2020 to ensure that the information provided is current.
However, one year after joining the registry, you will receive an email inviting you to complete a questionnaire to update your information. After completing this annual phase, you may receive an invitation to SUPPORT.
You can contact the research team at 514 987-5696 or at better@ircm.qc.ca.