The BETTER project
The BETTER project is a Canadian research initiative led by researchers, patient partners living with type 1 diabetes, healthcare professionals, and decision-makers (e.g., INESSS).
OUR MISSION
Enhancing and improving the lives of individuals affected by type 1 diabetes in Canada.
To address our mission, the project is built upon three essential pillars:
3 PILLARS
RESEARCH AND KNOWLEDGE:
Through data collection, we can shed light on the challenges of living with T1D and devise strategies to overcome them.
ACCESS TO TRAINING AND INFORMATION:
To address the challenges associated with type 1 diabetes, we have developed flexible and cost-effective training programs, specifically designed to meet the needs of individuals living with this condition and healthcare professionals.
ADVOCACY AND AWARENESS :
We work to create an environment conducive to access to care, treatment, and tailored support for individuals living with type 1 diabetes. For decision-makers, we provide objective and unique data. We also strive to raise awareness among the general public about the daily challenges and specific needs of individuals living with type 1 diabetes.
To fulfill our mission, the project is structured around three key components:
- A registry of individuals living with type 1 diabetes (or LADA) – or having a child living with this condition in Canada (the BETTER registry), where individuals voluntarily register to share their experiences with diabetes primarily through online questionnaires.
- An innovative bilingual online self-training platform (called Support) designed to enhance self-management for individuals living with type 1 diabetes (adults and adolescents), as well as to build healthcare professionals’ confidence in caring for patients with this condition.
- Clinical research and a biobank (called CREATE-1) aimed at advancing knowledge, care, and the utilization of treatments and technologies for type 1 diabetes.