The BETTER project

The BETTER Project is a Canadian research initiative carried out in collaboration with researchers, people living with type 1 diabetes, healthcare professionals, and decision-makers.

Launched in Quebec in 2019 and across Canada in 2022, the project aims to better understand the realities of people living with type 1 diabetes and help improve their lives, care, and access to treatments and technologies.

OUR MISSION

Enhancing and improving the lives of individuals affected by type 1 diabetes in Canada.

How can we bring this mission to life?

To address our mission, the project is built upon three essential pillars:

3 PILLARS

RESEARCH AND KNOWLEDGE

Through the data and experiences shared by people living with type 1 diabetes, we seek to better understand their realities, highlight unmet needs, and advance knowledge.

ACCESS TO INFORMATION AND EDUCATION

We develop and share resources and educational programs to help people living with type 1 diabetes better understand and manage their diabetes, and to support the healthcare professionals who care for them.

ADVOCACY AND AWARENESS

We work to raise awareness of the realities and needs of people living with type 1 diabetes. The data collected through the project can also contribute to discussions about care, treatments, technologies, and services for people living with type 1 diabetes.

How does the project work?

To fulfill our mission, the project is structured around 4 key components:

THE BETTER REGISTRY

The BETTER registry gives people living with type 1 diabetes or LADA in Canada, as well as parents of children living with these conditions, an opportunity to share their experiences and realities. Participants complete online questionnaires and may be invited to take part in different research projects over time.

THE SUPPORT PLATFORM

Support is a bilingual information and self-learning platform for people living with type 1 diabetes and healthcare professionals. It offers content and tools to help people better understand type 1 diabetes and manage it in their daily lives, as well as training for healthcare professionals who support people living with the condition.

THE CREATE-1 BIOBANK

CREATE-1 is the BETTER Project’s biobank. It brings together biological samples and data that can be used to better understand type 1 diabetes and support a range of research projects.

OTHER RESEARCH

These studies help deepen our knowledge, better understand the needs of the community, and explore new ways to improve care and life with type 1 diabetes.

What research is being conducted through the BETTER project?